This resource provides information on how physical activity can be maintained for a person living with motor neuron disease.

What you should know

• Motor neurone disease (MND) weakens muscles across the body, affecting amongst other things mobility, movement and physical activity.
• More research is required to determine whether exercise with MND is helpful or harmful. Studies suggest exercise may help with performing daily activities and quality of life in the medium to long term. However, in people carrying the C9ORF72 mutation, frequent and intense anaerobic burst activity may be detrimental.
• Physical activity with MND is best undertaken with the guidance of a health professional and tailored based on functionality, needs and preferences.
• Fatigue should be closely monitored as part of physical activity with MND.
• Evidence suggests that people living with MND prefer physical activities they enjoy and may benefit from healthcare professionals finding ways to support those activities.